Vulnerabilities and stresses of families of children with Congenital Zika Virus Syndrome

Authors

DOI:

https://doi.org/10.15253/2175-6783.20212262772

Keywords:

Mothers; Microcephaly; Zika Virus Infection; Epidemics.

Abstract

Objective: to identify situations of vulnerability and accumulation of tensions in the care of the child with Congenital Zika Virus Syndrome. Methods: qualitative study, in which 40 mothers of children with Congenital Zika Virus Syndrome participated. The research instruments used were a semi-structured interview, construction of genograms and ecomaps and field diary notes. The collected data were submitted to content analysis in the thematic modality. Results: the main situations identified were caring alone for the child with Congenital Zika Virus Syndrome; conflicts with the partner or marital separation; family abandonment; absence or health problems with other children; and financial difficulties. Conclusion: vulnerabilities, family conflicts, and financial difficulties were considered sources of family tension and stress when facing expenses with medications and treatments, revealing racial and socioeconomic disparities in the access to health care.

References

Souza NL. Congenital Zika syndrome: views from Northeast Brazil. Cad Saúde Pública. 2018; 34(2):e00184017. doi: https://doi.org/10.1590/0102-311x00184017

Cunha ACB, Pereira Junior JP, Caldeira CLV, Carneiro VMSP. Diagnóstico de malformações congênitas: impactos sobre a saúde mental de gestantes. Estud Psicol. 2016; 33(4):601-11. doi: https://doi.org/10.1590/1982-02752016000400004

McCubbin MA, McCubbin HI. Families coping with illness: the Resiliency Model Family Stresse, Adjustment, and Adaptation. In: Danielson C, Hamel-Bissell B, Winstead-Fry P. Families, health & ilness: perspectives on coping and intervention. St Louis: Mosby; 1993. p. 21-63.

Moreira MCN, Mendes CHF, Nascimento M. Zika, women’s prominent role and care: rehearsing contact zones. Interface. 2018; 22(66):697-708. doi: https://doi.org/10.1590/1807-57622017.0930

Wright LM, Leahey M. Enfermeiras e famílias: um guia para avaliação e intervenção na família. São Paulo: Roca; 2012.

Costa PHA, Mota DCB, Cruvinel E, Silveira OS, Ronzani TM. O ecomapa como ferramenta na formação para o trabalho em rede no campo de álcool e outras drogas. Pesqu Prát Psicossociais [Internet]. 2016 [cited Mar 13, 2021]; 11(3):669-81. Available from: http://pepsic.bvsalud.org/pdf/ppp/v11n3/11.pdf

Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2016.

Hamad GBNZ, Souza KV. Special child, special mother: the sense of strength in mothers of children with congenital zika virus syndrome. Esc Anna Nery. 2019; 23(4):e20190022. doi: https://doi.org/10.1590/2177-9465-ean-2019-0022

Bulhões CSG, Almeida AM, Reichert APS, Abreu PD, Dias MD. Oral hstory of mothers of children with Congenital Zika Virus Syndrome. Texto Contexto Enferm. 2020; 29:e20190167. doi: https://doi.org/10.1590/1980-265x-tce-2019-0167

Pimentel PLB, Furtado FMF, Saldanha AAW. Vulnerabilidades acerca do cuidado na perspectiva de mães de bebês com microcefalia. Psicol Estud [Internet]. 2018 [cited Mar 13, 2021]; 23:1-15. Available from: http://periodicos.uem.br/ojs/index.php/PsicolEstud/article/view/40178

Silva DA, Silva EQ. Mental health from the perspective of women affected by the Zika virus: an ethnographic study in Pará State, Brazil. Cad Saúde Pública. 2020; 36(8):e00100019. doi: https://doi.org/10.1590/0102-311x00100019

Instituto de Pesquisa Econômica Aplicada. Epidemia do vírus Zika e microcefalia no Brasil: emergência, evolução e enfrentamento. Texto para discussão. Rio de Janeiro: IPEA; 2018.

Bailey DB, Ventura LO. The likely impact of Congenital Zika Syndrome on families: considerations for family supports and services. Pediatrics. 2018; 141:e20172038. doi: https://doi.org/10.1542/peds.2017-2038G

Costa ES, Bonfim EG, Magalhães RLB, Viana LMM. Mothers’ experiences of children with microcephaly. Rev Rene. 2018; 19:e3453. doi: https://doi.org/10.15253/2175-6783.2018193453

Sá FE, Andrade MMG, Nogueira EMC, Lopes JSM, Silva APEP, Assis AMV. Parental needs in the care for children with Zika virus-induced microcephaly. Rev Bras Promoç Saúde. 2017; 30(4):1-10. doi: https://dx.doi.org/10.5020/18061230.2017.6629

Barros SMM, Monteiro PAL, Neves MB, Maciel GTS. Fortalecendo a rede de apoio de mães no contexto da síndrome congênita do vírus Zika: relatos de uma intervenção psicossocial e sistêmica. Nova Perspect Sist [Internet]. 2017 [cited Mar 13, 2021]; 26(58):38-59. Available from: http://pepsic.bvsalud.org/pdf/nps/v26n58/n26a04.pdf

Porto RM, Costa PRSM. O corpo marcado: a construção do discurso midiático sobre Zika Vírus e microcefalia. Cad Gen Divers. 2017; 3(2):159-91. doi: http://dx.doi.org/10.9771/cgd.v3i2.22125

Hilkner SH, Beck ARM, Tanaka EZ, Dini AP. Percepções de irmãos de crianças hospitalizadas por doença crônica. Rev Enf Ref. 2019; 4(20):77-86. doi: http://dx.doi.org/10.12707/RIV18074

Diniz D. Zika virus and women. Cad Saúde Pública. 2016; 32(5):e00046316. doi: https://doi.org/10.1590/0102-311X00046316

Published

2021-07-12

How to Cite

Hamad, G. B. N. Z., Tupinambás, U. ., & Souza, K. V. de. (2021). Vulnerabilities and stresses of families of children with Congenital Zika Virus Syndrome. Rev Rene, 22, e62772. https://doi.org/10.15253/2175-6783.20212262772

Issue

Section

Research Article

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