Primary Health Care to meet families of children with special needs
DOI:
https://doi.org/10.15253/2175-6783.20202143369Keywords:
Disabled Children; Primary Health Care; Child Health Services; Family.Abstract
Objective: to understand the organization of the Primary Health Care service to meet families of children with special needs. Methods: qualitative research, developed with 33 professionals, through semi-structured interviews. We used thematic categorical analysis, with the aid of the WebQDA® software. Results: we raised two categories: Strengths and weaknesses in the organization of the care of children with special needs, which showed ambiguity in the assistance in relation to the understanding of the rights and participation of families in the follow-up; and Infrastructure of services for meeting children with special needs, where limitations were expressed in the organization of services and in Health Care Networks. Conclusion: we perceived ambiguity and unpreparedness of services in relation to the care of these children, in the qualification of the team, as well as the lack of specific protocols to standardize this assistance.
References
Santos AM, Almeida PF. Atención especializada en regiones de salud: desafios para garantizar el cuidado integral en Brasil. Rev Salud Pública. 2018; 20(3):301-7. doi: https://doi.org/10.15446/rsap.V20n3.61392
Condeles PC, Bracarense CF, Parreira BDM, Rezende MP, Chaves LDP, Goulart BF. Teamwork in the Family Health Strategy: professionals’ perceptions. Esc Anna Nery. 2019; 23(4):e20190096. doi: https://doi.org/10.1590/2177-9465-EAN-2019-0096
Almeida MHM, Pacheco S, Krebs S, Oliveira AM, Samelli A, Molini-Avejonas DR, et al. Avaliação da atenção primária em saúde por usuários com e sem deficiência. CoDAS 2017; 29(5):e20160225. doi:https://doi.org/10.1590/2317-1782/20172016225
Belmiro SSDR, Miranda FAN, Moura IBL, Carvalho SR, Monteiro AI. Practice of the primary health care nursing team towards children with disabilities. Rev Enferm UFPE On line. 2017. doi: https://doi.org/10.5205/reuol.10438-93070-1-RV.1104sup201710
Iudici A, Favaretto G, Turchi GP. Community perspective: how volunteers, professionals, families and the general population construct disability: social, clinical and health implications. Dis Health J. 2018; 12(2):171-9. doi: https://doi.org/10.1016/j.dhjo.2018.11.014
Altman L, Zurynski Y, Breen C, Hoffmann T, Woolfenden S. A qualitative study of health care providers’ perceptions and experiences of working together to care for children with medical complexity (CMC). BMC Health Serv Res. 2018; 18(1):70. doi: https://doi.org/10.1186/s12913-018-2857-8
Mattson G, Kuo DZ, Committee on Psychosocial Aspects of Child and Family Health and Council on Children with Disabilities. Psychosocial factors in children and youth with special health care needs and their families. Pediatrics. 2019; 143(1):e20183171. doi: https://doi.org/10.1542/peds.2018-3171
National Academies of Sciences, Engineering and Medicine. Opportunities for improving programs and services for children with disabilities. Washington, DC: The National Academies Press; 2018.
Dezoti AP, Alexandre AMC, Freire MHS, Mercês NNA, Mazza VA. Social support to the families of children with cerebral palsy. Acta Paul Enferm. 2015; 28(2):172-6. doi: https://doi.org/10.1590/1982-0194201500029
Bardin L. Análise de conteúdo. Lisboa: Edições 70; 2016.
Souza MHN, Nóbrega VM, Collet N. Social network of children with cronic disease: know- ledge and practice of nursing. Rev Bras Enferm. 2020; 73(2):e20180371. doi: https://doi.org/10.1590/0034-7167-2018-0371
Machado WCA, Pereira JS, Schoeller SD, Júlio LC, Martins MMFPS, Figueiredo NMA. Comprehensiveness in the care network regarding the care of the disabled person. Texto Contexto Enferm. 2018; 27(3):e4480016. doi: http://dx.doi.org/10.1590/0104-07072018004480016
Dubow C, Garcia EL, Krug SBF. Percepções sobre a rede de cuidados à pessoa com deficiência em uma região de saúde. Saúde Debate. 2018; 42(117):455-67. doi: https://doi.org/10.1590/0103-1104201811709
Zeidan J, Shikako-Thomas K, Ehsan A, Maioni A, Elsabbagh M. Progress and gaps in Quebec’s autism policy: a comprehensive review and thematic analysis. Can J Public Health. 2019; 1194):485-96. doi: https://doi.org/10.17269/s41997-019-00202-7
Bishop C, Small N, Parslow, Bowles D. Improving service coordination for children with complex needs. Br J Healthcare Manag. 2015; 21(10). doi: https://doi.org/10.12968/bjhc.2015.21.10.469
Declaration of Astana. Global Conference on Primary Health Care. Astana, Kazakhstan, 25–26 [Internet]. 2018 [cited Mar 13, 2020]. Available from:https://www.who.int/docs/default-source/primary-health/declaration/gcphc-declaration
Eboreime EA, Eyles J, Nxumalo N, Eboreime OL, Ramaswamy R. Implementation process and quality of a primary health care system improvement initiative in a decentralized context: A retrospective appraisal using the quality implementation framework. Int J Health Plann Mgmt. 2019; 34:e369-e86. doi: https://doi.org/10.1002/hpm.2655
Wang X, Yang H, Duan Z, Pan J. Spatial accessibility of primary health care in China: a case study in Sichuan Province. Soc Sci Med. 2018; 209:14-24. doi: https://doi.org/10.1016/j.socscimed.2018.05.023
Santos RABG, Figueiredo LRU, Lima LC. Apoio matricial e ações na atenção primária: experiência de profissionais de ESF e NASF. Saúde Debate. 2017; 41(114):694-706. doi: https://doi.org/10.1590/0103-1104201711402
Choo YY, Agarwal P, How CH, Yeleswarapu SP. Developmental delay: identification and management at primary care level. Singapore Med J. 2019; 60(3):119-23. doi: https://doi.org/10.11622/smedj.2019025
