Cuidado familiar de crianças em condição crônica no contexto da pandemia pela COVID-19

Maísa Mara Lopes Macedo; Nayara Luiza Henriques; Sérgio Deodato; Elysângela Dittz Duarte

doi:10.15253/2175-6783.20232483087

Authors

Maísa Mara Lopes Macedo Universidade Federal de Minas Gerais https://orcid.org/0000-0002-8075-6857
Nayara Luiza Henriques Universidade Federal de Minas Gerais https://orcid.org/0000-0003-0765-187X
Sérgio Deodato Universidade Católica Portuguesa, Centre for Interdisciplinary Research in Health https://orcid.org/0000-0002-8076-8276
Elysângela Dittz Duarte Universidade Federal de Minas Gerais https://orcid.org/0000-0001-8170-7523

DOI:

https://doi.org/10.15253/2175-6783.20232483087

Keywords:

Chronic Disease; Child Care; Family; COVID-19; Qualitative Research.

Abstract

Objective: to describe how families experienced the care of children in chronic condition during the pandemic by COVID-19. Methods: qualitative study, guided by the Family Management Style Model, conducted with 24 families of children in chronic condition. The data, collected by telephone contact through semi-structured interviews, were submitted to thematic analysis. Results: data analysis resulted in three thematic categories: Changes in the routine of family members; Emotions triggered in family members and children due to the pandemic; and Implications of the pandemic by COVID-19 for the continuity of care. They highlighted: incorporation of hygiene care, social distancing concomitant to domestic and professional activities at home; and feelings of fear and concern about the children's health and development and the need for caregivers to provide rehabilitation and support for school activities. Conclusion: it was observed that the pandemic changed the family routine, produced negative feelings in families, modified care demands and compromised access to services. Contributions to practice: these results contribute to the identification of the repercussions of COVID-19 on families and children with chronic conditions and can help establish strategies to reduce the consequences of this pandemic and other future health emergencies.

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