Parental perceptions of care during neonatal intensive care unit hospitalisation

Authors

DOI:

https://doi.org/10.36517/2175-6783.20262796485

Keywords:

Intensive Care Units, Neonatal; Family; User Embracement; Humanization of Assistance; Infant, Newborn.

Abstract

Objective: to explore parents’ perceptions of the care provided during their children’s hospitalisation in a neonatal intensive care unit. Methods: this qualitative study was conducted in a public hospital and included 13 parents whose children required neonatal intensive care. Interview data were analysed using thematic content analysis, while information from medical records was used to characterise the clinical profiles of participants. Results: participants reported satisfaction with the humanised care and supportive approach provided by the multiprofessional care team. Dissatisfaction was expressed regarding the presence of other family members, which was considered inappropriate given the vulnerability of the neonates. Parental involvement in care strengthened emotional bonding as well as confidence and a sense of security in handling the infant. Initial feelings of fear and anxiety evolved into hope and gratitude over time. Conclusion: care in neonatal intensive care units extends beyond the neonate, encompassing family support and promoting emotional well-being and healthy development. Contributions to practice: the findings highlight the need to enhance care practices in neonatal intensive care units by fostering effective communication, providing emotional support, and encouraging parental involvement in care.

Downloads

Download data is not yet available.

References

1. Paula LS, Celli A, Mariotto RMM, Lago-Guimarães HNC, Marciniak A. Frequency of maternal stress and psychic risk in newborns who have been hospitalized in a neonatal intensive care unit. Rev Bras Saúde Mater Infant. 2022;22(4):783-79. doi: http://doi.org/10.1590/1806-9304202200040004

2. Federação Brasileira das Associações de Ginecologia e Obstetrícia. Parto prematuro responde a 11% dos nascimentos no Brasil [Internet]. 2025 [cited Mar 6, 2026]. Available from: https://www.febrasgo.org.br/pt/noticias/item/2268-parto-prematuro-responde-a-11-dos-nascimentos-no-brasil

3. Silveira TB, Tavella RA, Fernandez JB, Ribeiro APFA, Garcia EM, Silva Júnior FMR. Perfil epidemiológico de recém-nascidos internados em Unidades de Terapia Intensiva Neonatal em hospitais universitários no extremo Sul do Brasil. Rev Ciênc Saúde. 2020;32(2):46-54. doi: https://doi.org/10.14295/vittalle.v32i2.9815

4. Montagner CD, Arenales NG, Rodrigues OMPR. Mothers of babies in NICU: support network and coping. Fractal Rev Psicol. 2022;34:e28423. doi: https://doi.org/10.22409/1984-0292/2022/v34/28423

5. Ferreira DO, Komori NM, Lima FR, Parreira BDM, Nicolussi AC, Goulart BF. Communication between professionals and family members during hospitalization of newborns and infants: an integrative review. Rev Enferm UERJ. 2022;30(1):e60868. doi: https://doi.org/10.12957/reuerj.2022.60868

6. Anominondas KC, Santos AMD, Martins CCF, Alves AKYA, Salvador PTCO, Oliveira LV. A vivência de pais de recém-nascidos prematuros internados em unidade de terapia intensiva neonatal. Rev Recien. 2021;11(35):309-16. doi: https://doi.org/10.24276/rrecien2021.11.35.309-316

7. Nascimento ACST, Morais AC, Souza SL, Whitaker MCO. Perceptions of relatives on premature birth in a neonatal intensive care unit: a cross-cultural study. Rev Cuid. 2021;13(1):e1043. doi: https://doi.org/10.15649/cuidarte.1043

8. Fonseca SA, Silveira AO, Franzoi MAH, Motta E. Family centered-care at the neonatal intensive care unit (NICU): nurses’ experiences. Enfermería (Montevideo). 2020;9(2):170-90. doi: https://doi.org/10.22235/ech.v9i2.1908

9. Araujo EB, Reis DBC, Rocha AD, Machado ABS. Internação e alta hospitalar do recém-nascido na unidade de cuidado neonatal: identificação das dúvidas dos pais. Rev Enferm Atual In Derme. 2022; 96(39):e-021265. doi: https://doi.org/10.31011/reaid-2022-v.96-n.39-art.1405

10. Martins MC, Boeckmann LMM, Melo MC, Moura AS, Morais RCM, Mazoni SR, et al. Nursing mothers’ perceptions when experiencing prematurity in the neonatal intensive care unit. Cogitare Enferm. 2022;27:e80125. doi: https://doi.org/10.5380/ce.v27i0.80125

11. Zanfolim LC, Cerchiari EAN, Ganassin FMH. Difficulties experienced by mothers during the hospitalization of their babies at neonatal units. Psicol Ciênc Prof. 2018;38(1):22-35. doi: https://doi.org/10.1590/1982-3703000292017

12. Ministério da Saúde (BR). Política Nacional de Humanização [Internet]. 2013 [cited Jan 10, 2026] Available from: https://bvsms.saude.gov.br/bvs/publicacoes/politica_nacional_humanizacao_pnh_folheto.pdf

13. Souza VRS, Marziale MHP, Silva GTR, Nascimento PL. Translation and validation into Brazilian Portuguese and assessment of the COREQ checklist. Acta Paul Enferm. 2021;34;eAPE02631. doi: https://doi.org/10.37689/acta-ape/2021AO02631

14. Moura CO, Silva IR, Silva TP, Santos KA, Crespo MCA, Silva MM. Methodological path to reach the degree of saturation in qualitative research: grounded theory. Rev Bras Enferm. 2022;75(2):e20201379. doi: https://doi.org/10.1590/0034-7167-2020-1379

15. Bardin L. Análise de conteúdo. São Paulo: Edições 70, 2016.

16. Costa LD, Dalmuth KH, Vieira MTF, Girardi E, Fachinello G, Silva ÂM, et al. Analysis of the development of children discharged from the Neonatal Intensive Care Unit from parents’ point of view. Rev Bras Enferm. 2023;76(5):e20220717. doi: http://doi.org/10.1590/0034-7167-2022-0717

17. Martins MC, Boeckmann LMM, Melo MC, Moura AS, Morais RCM, Mazoni SR, et al. Nursing mothers’ perceptions when experiencing prematurity in the neonatal intensive care unit. Cogitare Enferm. 2022;27:e80125. doi: https://doi.org/10.5380/ce.v27i0.80125

18. Kegler JJ, Neves ET, Silva AM, Oliveira DC, Zamberlan KC. Factors associated with parental stress in a Neonatal Intensive Care Unit. Acta Paul Enferm. 2023;36:eAPE02061. doi: https://dx.doi.org/10.37689/acta-ape/2023AO02061

19. Gonçalves GH, Gazola M, Batista NT, Farinha FT, Souza JA, Razera AP, et al. Percepção de mães sobre a visitação aberta na unidade de terapia intensiva neonatal. Enferm Foco. 2024;15:e-202403. doi: https://doi.org/10.21675/2357-707X.2024.v15.e-202403

20. Bernardino FBS, Silva EFL, Silva RA, Mufato LF, Vieira CS, Gaíva MAM. Experience of family members in the care of preterm newborns discharged from a neonatal intensive care unit. Rev Rene. 2022;23:e80705. doi: https://doi.org/10.15253/2175-6783.20222380705

21. Lima MF, Siqueira RM, Ventura CMU. Neonatal ICU: perception of the parents about the hospitalization and the care of the nursing team. Rev Gest Conhecimento. 2022;16(2):692-705. doi: https://doi.org/10.55908/RGCV16N2-011

22. Marçola L, Zoboli I, Polastrini RTV, Barbosa SMM. Breaking bad news in a Neonatal Intensive Care: the parent’s evaluation. Rev Paul Pediatr. 2020;38:e2019092. doi: https://dx.doi.org/10.1590/1984-0462/2020/38/2019092

23. Costa JS, Moraes ES, Carmona EV, Mendes-Castillo AMC. Family-centered care in neonatal intensive units: The perceptions of nursing technicians. Rev Enferm Ref. 2022;6(1):e21144. doi: https://doi.org/10.12707/RV21144

24. Uema RTB, Rodrigues BC, Rissi GP, Felipin LCS, Higarashi IH. Family-centered care in neonatology: health workers’ and families’ perceptions. Rev Enferm. UERJ. 2020;28:e45871. doi: https://doi.org/10.12957/reuerj.2020.45871

25. Aguiar JRV, Dornelles C, Prado ARA, Prado FM, Barros FCLF, Arrieira RO. Evaluación de las hospitalizaciones de recién nacidos en una UCI Neonatal durante una pandemia. Rev Urug Enferm. 2022;17(2):e202. doi: https://doi.org/10.33517/rue2022v17n2a7

26. Fermino V, Mattos K, Emidio SCD, Mendes-Castillo AMC, Carmona EV. Fatherly feelings about child hospitalization in a neonatal unit. Rev Min Enferm. 2020;24(1):e-1280. doi: https://dx.doi.org/10.5935/1415-2762.20200009

27. Neves RS, Zimmermann J, Broering CV. UTI Neonatal: o que dizem as mães. Rev Psicol Saúde Debate. 2021;7(1):187-214. doi: https://doi.org/10.22289/2446-922X.V7N1A14

Published

2026-04-10

Data Availability Statement

All data supporting the findings of this study are available within the article.

Issue

Section

Research Article

How to Cite

1.
Costa LD, Vieira MTF, Deotti YEP, Santos LR dos, Dalmuth KH, Cavalheiri JC, et al. Parental perceptions of care during neonatal intensive care unit hospitalisation. Rev Rene [Internet]. 2026 Apr. 10 [cited 2026 Apr. 13];27:e96485. Available from: https://periodicos.ufc.br/rene/article/view/96485