Experiences and daily limitations of people with systemic lupus erythematosus
DOI:
https://doi.org/10.36517/2175-6783.20262796444Keywords:
Nursing; Lupus Erythematosus, Systemic; Mental Health; Autoimmune Diseases.Abstract
Objective: to analyze perceptions of people with lupus regarding psychosocial impacts and daily limitations. Methods: qualitative, interpretive study conducted in a rheumatology outpatient clinic of a university hospital in Northeastern Brazil. The convenience sample was defined by saturation. Data were collected using a sociodemographic questionnaire and semistructured interviews. The corpus was analyzed by Descending Hierarchical Classification using IRAMUTEQ and interpreted through Reflexive Thematic Analysis. Results: forty-two participants were included, predominantly mixed-race women aged 25–30 years, married, with children. Five thematic classes were identified: coping and adaptation; knowledge and diagnosis; physical manifestations and symptoms; access barriers and social support; and experiences with the healthcare system and medications. Emotional distress, isolation, and uncertainty were associated with chronic pain, fatigue, and functional limitations. Difficulties in accessing consultations, tests, and medications were reported, as well as weaknesses in institutional support. Coping strategies included spirituality, self-care, and support networks. Conclusion: lupus impacts extend beyond the biological dimension, involving psychological distress, social limitations, and structural barriers. Contributions to practice: findings support nursing interventions focused on psychosocial assessment, mental health screening, and psychoeducational strategies for individualized care.
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References
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The authors declare that the entire dataset can be requested directly from the corresponding author.
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Copyright (c) 2026 Michelle Kemilly Pereira Holanda, Mariana Silva Pessoa, Felicialle Pereira Silva, Marilene Cordeiro do Nascimento, Isla Daniela da Silva Pinto, Selene Cordeiro Vasconcelos
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