Itinerário terapêutico de famílias de crianças com necessidades especiais de saúde

Roberta de Oliveira Luz; Greice Machado Pieszak; Andrea Moreira Arrué; Giovana Calcagno Gomes; Eliane Tatsch Neves; Andressa Peripolli Rodrigues

doi:10.15253/2175-6783.20192033937

Authors

Roberta de Oliveira Luz Universidade Regional Integrada do Alto Uruguai e das Missões https://orcid.org/0000-0001-8989-6138
Greice Machado Pieszak Universidade Regional Integrada do Alto Uruguai e das Missões https://orcid.org/0000-0003-4980-3253
Andrea Moreira Arrué Escola Nacional de Saúde Pública Sergio Arouca https://orcid.org/0000-0001-5391-324X
Giovana Calcagno Gomes Universidade Federal do Rio Grande https://orcid.org/0000-0002-2464-1537
Eliane Tatsch Neves Universidade Federal de Santa Maria https://orcid.org/0000-0002-1559-9533
Andressa Peripolli Rodrigues Instituto Federal de Educação, Ciência e Tecnologia Farroupilha https://orcid.org/0000-0002-7599-4674

DOI:

https://doi.org/10.15253/2175-6783.20192033937

Keywords:

Disabled Children; Family; Pediatric Nursing; Health Services Accessibility.

Abstract

Objective: to describe the therapeutic itinerary of families of children with special health needs. Methods: this is a qualitative study carried out at the household of 14 families enrolled in primary health care. Results: Participant families reported negative feelings with the discovery of the diagnosis, which intensified with the absence of professional guidance. They faced difficulties of access by the Unified Health System, having to seek the private service to care for their children and fragility regarding their own rights. Conclusion: in the therapeutic itinerary of the families of children with special health needs, they suffer constant pilgrimages through health care networks seeking assistance and resolution.

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