The experience of patients undergoing liver transplantation in the transition of care

Keywords: Nursing Care; Continuity of Patient Care; Transplant Recipients; Liver Transplantation; Transitional Care.

Abstract

Objective: to understand the experience of patients undergoing liver transplantation in the transition of care between hospital and home. Methods: study with a qualitative approach, with 20 patients undergoing liver transplantation who were interviewed using a semi-structured script. Content analysis was the selected technique to identify aspects inherent to the transition of care. Results: based on the data obtained, four thematic categories were formed: Path marked by feelings and uncertainties; Path of comings and goings to the health network to acquire supplies; Learning path to develop home care and: Itinerary between social idealization and the reality experienced after transplantation. Conclusion: difficulties of recipients and family after liver transplantation were perceived, especially in the preparation for the transition of care and in coping and adapting to daily activities.


References

Pinheiro SJ, Oliveira LBC, Lima CER, Jucá MM, Andrade ÍRC, Citó MCO. Adult hepatic transplant patient health care in the late post-operative. Rev Enferm UFPE on line. 2018; 12(5):1310-6. doi: https://doi.org/10.5205/1981-8963-v12i5a230932p1310-1316-2018

Oliveira PC, Deta FP, Paglione HB, Mucci S, Schirmer J, Roza BDA. Adherence to liver transplantation treatment: an integrative review. Cogitare Enferm. 2019; 24:e58326. doi: https://dx.doi.org/10.5380/ce.v24i0.58326

McGinnis CW, Hays SM. Adults with liver failure in the intensive care unit: a transplant primer for nurses. Crit Care Nurs Clin North Am. 2018; 30(1):137-48. doi: https://doi.org/10.1016/j.cnc.2017.10.012

Bustamante DA, Serrano LCA, Duca WJ, Silva RCMA. Adaptação do instrumental de avaliação social em transplante hepático. Arch Health Sci. 2019; 26(2):99-106. doi: https://doi.org/10.17696/2318-3691.26.2.2019.1526

Morais EN, Conrad D, Machado GC, Abreu MO, Matos EM, Cruz SAC. Postoperative complications of liver transplant: evidence for the optimization of nursing care. Rev Pesqu Fundam Care Online. 2017; 9(4):999-1007. doi: http://dx.doi.org/10.9789/2175-5361.2017.v9i4.999-1007

Negreiros FDS, Pequeno AMC, Alencar CS, Carvalho GSO, Moreira TR. Perceptions of nurses about the competences developed in postoperative care after a liver transplant. Rev Rene. 2020; 21:e41786. doi: https://doi.org/10.15253/2175-6783.20202141876

Knihs NS, Lorençoni BP, Pessoa JLE, Paim SMS, Ramos SF, Martins MS, et al. Health needs of patients undergoing liver transplant from the context of hospital discharge. Transplant Proc. 2020; 52(5):1344-9. doi: https://doi.org/10.1016/j.transproceed.2020.02.022

Orem D. Nursing: concepts of practice. St. Louis: Mosby; 2001.

Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2016.

Santos J, Meira KC, Camacho AR, Salvador PTC, Guimarães RM, Pierin AMG, et al. Mortality due to acute myocardial infarction in Brazil and its geographical regions: analyzing the effect of age-period- cohort. Ciênc Saúde Coletiva. 2018; 23(5):1634-21. doi: https://doi.org/10.1590/1413- 81232018235.16092016

Ministério da Saúde (BR). Boletim epidemiológico Hepatites Virais [Internet]. 2018 [cited Jan 13, 2021]. Available from: https://portalarquivos2.saude.gov.br/images/pdf/2018/julho/05/Boletim-Hepatites-2018.pdf

Silva ACS, Martins BCC, Adriano LS, Fonteles MMF, Reis PHV, Chaves EF. Complexidade da farmacoterapia pós-transplante renal: influência na adesão ao tratamento. Rev Eletr Farm. 2017; 14(3):53-63. doi: https://doi.org/10.5216/ref.v14i3.44894

Wachholz LF, Knihs NS, Martins SR, Magalhães ALP, Brehmer LCF, Martins MS. Hospital discharge of liver transplantation patient: an integrative review. Esc Anna Nery. 2020; 24(4):e20190346. doi:https://doi.org/10.1590/2177-9465-ean-2019-0346

Knihs NS, Sens S, Silva AM, Wachholz LF, Paim SMS, Magalhães ALP. Care transition for liver transplanted patients during the COVID-19 pandemic. Texto Contexto Enferm. 2020; 29:e20200191. doi:https://doi.org/10.1590/1980-265X-TCE-2020-0191

Mota L, Bastos FS, Brito MAC. Liver transplant recipients: nursing therapeutics during follow-up. Rev Enf Ref. 2018; serIV(16):19-28. doi: http://dx.doi.org/10.12707/RIV17086

Tavares NUL, Bertoldi AD, Mengue SS, Arrais PSD, Luiza VL, Oliveira MA, et al. Factors associated with low adherence to medicine treatment for chronic diseases in Brazil. Rev Saúde Pública. 2016; 50(supl 2):10s. doi: https://doi.org/10.1590/S1518-8787.20160500061 50

Hermida PMV, Nascimento ERP, Echevarría-Guanilo ME, Andrade SR, Ortiga ÂMB. Counter-referral in emergency care units: discourse of the collective speech. Rev Bras Enferm. 2019; 72(Suppl 1):143-50. doi: https://doi.org/10.1590/0034-7167-2018-0023

Empresa Brasileira de Serviços Hospitalares. Transplante hepático – planejamento da alta hospitalar do paciente transplantado hepático [Internet]. 2021 [cited Mar 18, 2021]. Available from: https://www.gov.br/ebserh/pt-br/hospitais-universitarios/regiao-sul/hu-ufsc/saude/nucleo-de-transplantes-hu-ufsc/transplante-hepatico

Pena MM, Melleiro MM. Adverse events caused by communication failure: considerations about a model for care handover. Rev Enferm UFSM. 2018; 8(3):616-25. doi: https://doi.org/10.5902/2179769225432

Dabbs AD, Song MK, Myers BA, Li R, Hawkins RP, Pilewski JM, et al. A randomized controlled trial of a mobile health intervention to promote self-management after lung transplantation. Am J Transplant. 2016; 16(7):2172-80. doi: https://doi.org/10.1111/ajt.13701

Published
2021-04-19
Section
Research Article