The expert patient's contribution to the empowerment of people with diabetes mellitus

Authors

DOI:

https://doi.org/10.15253/2175-6783.20232491843

Keywords:

Diabetes Mellitus; Empowerment; Patients; Self Care; Online Social Networking.

Abstract

Objective: to uncover the contributions of specialist patients to the empowerment of people with diabetes mellitus. Methods: a qualitative study comprising three open virtual communities with public posts in Portuguese, aimed at discussing diabetes mellitus. The nuclei of meaning were identified through a word cloud, with mutual checking between three researchers using content analysis. Results: the interactions showed concern about the clinical dimension of the disease and the welcoming nature of suffering and anguish. It was also observed that living with diabetes provides knowledge about the disease, making these people propagators of knowledge and ensuring their participation in the treatment process. Furthermore, the dialogues provided by the online environment can contribute to health promotion, facilitating understanding of aspects inherent to diabetes. Conclusion: specialist patients are willing to answer questions based on the knowledge they have acquired through the experience of becoming ill, supporting their recommendations in the care and recommendations received during treatment. Contributions to practice: it is hoped that the results can contribute to the recognition and appreciation of new approaches to health promotion and self-care for people with diabetes, such as virtual communities.

References

Fernandes LS, Calado C, Araújo CAS. Social networks and health practices: influence of a diabetes online community on adherence to treatment. Ciênc Saúde Colet. 2018;23(10):3357-68. doi: http://doi.org/10.1590/1413-812320182310.14122018

Falcão LD, Garbin HBR, Koifman L. The Internet as an adjunct to the empowerment of patients living with HIV/Aids. Physis. 2020;30(2):e300231. doi: http://doi.org/10.1590/S0103-73312020300231

Bezerril MS, Moreno IM, Ayllón FS, Lira ALBC, Cogo ALP, Santos VEP. Analysis of the expert patient concept according to Walker and Avant’s model. Texto Contexto Enferm. 2022;31:e20210167. doi: https://doi.org/10.1590/1980-265X-TCE-2021-0167en

Nascimento AAA, Azevedo VD, Moreno IM, Martinez DG, Dantas DV, Dantas RAN, et al. Perspectives and challenges for implementing the expert patient program: a scoping review. Texto Contexto Enferm. 2023;32:e20220222. doi: https://doi.org/10.1590/1980-265X-TCE-2022-0222en

Robles-Sanchez MA, Amil-Bujan P, Bosch-Farré C, Coll-Martínez C, Arévalo MJ, Anglada E, et al. An expert patient program to improve the empowerment and quality of life of people with multiple sclerosis: protocol for a multicenter pre-post intervention study. Front Neurol. 2023;14:1172640. doi: https://doi.org/10.3389/fneur.2023.1172640

Melo MC, Vasconcellos-Silva PR. Uso de comunidades virtuais no suporte a portadoras de câncer de mama. Ciênc Saúde Coletiva. 2018;23(10):3347-56. doi: https://dx.doi.org/10.1590/1413-812320182310.14612018

Alencar DC, Ibiapina ARS, Oliveira SKP, Carvalho DBF, Vasconcellos-Silva PR. Use of virtual communities to support people with diabetes mellitus. Esc Anna Nery. 2023;27:e20220246. doi: https://doi.org/10.1590/2177-9465-EAN-2022-0246en

Nunes LB, Santos JC, Reis IA, Torres HC. Attitudes towards self-care in type 2 diabetes mellitus in primary care. Acta Paul Enferm. 2021;34:eAPE001765. doi: https://doi.org/10.37689/acta-ape/2021AO001765

Boell JEW, Silva DMGV, Echevarria-Guanilo ME, Hegadoren K, Meirelles BHS, Suplici SR. Resilience and self-care in people with diabetes mellitus. Texto Contexto Enferm. 2020;29:e20180105. doi:http://doi.org/10.1590/1980-265X-TCE-2018-0105

Arsand E, Bradway M, Gabarron E. What are diabetes patients versus health care personnel discussing on social media? J Diabetes Sci Technol. 2019;13(2):198-205. doi: https://doi.org/10.1177/1932296818821649

Stellefson M, Paige S, Apperson A, Spratt S. Social media content analysis of public diabetes Facebook groups. J Diabetes Sci Technol. 2019;13(3):428-38. doi: https://dx.doi.org/10.1177/1932296819839099

Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2016.

Vilela RB, Ribeiro A, Batista NA. Word cloud as a tool for content analysis: an application to the challenges of the professional master’s degree courses in health education. Millenium. 2020;2(11):29-36. doi: https://dx.doi.org/10.29352/mill0211.03.00230

Stieglitz S, Lattemann C, Kallischnigg M. Experiential learning in virtual worlds - a case study for entrepreneurial training. AMCIS 2010 Proceedings [Internet]. 2010 [cited Sep 5, 2023];8:1-12. Available from: https://aisel.aisnet.org/cgi/viewcontent.cgi?article=1358&context=amcis2010

Shaw L, Jazayeri D, Kiegaldie D, Morris ME. Implementation of virtual communities of practice in healthcare to improve capability and capacity: a 10-year scoping review. Int J Environ Res Public Health. 2022;19(13):7994. doi: https://dx.doi.org/10.3390/ijerph19137994

Wang Y, Li DX, Wang YL, Tao W, Wang JT, Zhao YM, et al. Influence of small-group experiential learning of integrated traditional Chinese and Western medicine on the oral health knowledge, beliefs, and behaviors of elderly patients with diabetes. Rev Assoc Med Bras. 2022;68(2):217-21. doi: https://doi.org/10.1590/1806-9282.20210833

Alencar DC, Oliveira SKP, Ibiapina ARS, Carvalho DBF, Vasconcellos-Silva PR. Logic of care vs. logic of choice: reflections on shared practice in diabetes care. Rev Enferm UERJ. 2022;30:e68385. doi: https://doi.org/10.12957/reuerj.2022.68385

Ericsson C, Skagerström J, Schildmeijer K, Årestedt K, Broström A, Pakpour A, et al. Can patients contribute to safer care in meetings with healthcare professionals? A cross-sectional survey of patient perceptions and beliefs. BMJ Qual Saf. 2019;28(8):657-66. doi: https://doi.org/10.1136/bmjqs-2018-008524

Knorst GRS, Jesus VM, Menezes Jr AS. A relação com o médico na era do paciente expert: uma análise epistemológica. Interface. 2019;23:e180308. doi: https://doi.org/10.1590/interface.180308

Brahim LO. Reconsidering the ‘self’ in self-management of chronic illness: lessons from relational autonomy. Nurs Inq. 2019;26(3):e12292. doi: https://doi.org/10.1111/nin.12292

Benetoli A, Chen TF, Aslani P. How patients’ use of social media impacts their interactions with healthcare professionals. Patient Educ Couns. 2018;101(3):439-44. doi: https://dx.doi.org/10.1016/j.pec.2017.08.015

Mestre AG, Bujan PA, Sánchez EG, Pérez EMR, González SS, Segura JCC. Resultados del Programa Paciente Experto Catalunya® (PPE-CAT®) en insuficiencia cardiaca (IC) y enfermedad pulmonar obstructiva crónica (EPOC): 10 años de evolución de una actividad comunitaria de aprendizaje entre iguales. Xpa Health Commun [Internet]. 2018 [cited Jun. 13, 2023];2018(1):1-14. Available from:http://www.xpabcn.com/revista/index.php/XPAHC/article/view/7

Coêlho MCVS, Almeida CAPL, Silva ARV, Moura LKB, Feitosa LGGC, Nunes LB. Training in diabetes education: meanings attributed by primary care nurses. Rev Bras Enferm. 2018;71(suppl 4):1707-14. doi: https://dx.doi.org/10.1590/0034-7167-2017-0792

Achury-Saldaña DM, Restrepo L, Munar MK, Rodríguez I, Cely MC, Abril N, et al. Effect of an expert patient program in heart failure. Enferm Glob. 2020;19(57):493-506. doi: https://dx.doi.org/10.6018/eglobal.19.1.361801

Lin C, Cohen E, Livingston PM, Botti M. Perceptions of patient participation in symptom management: a qualitative study with cancer patients, doctors, and nurses. J Adv Nurs. 2019;75(2):412-22. doi: https://doi.org/10.1111/jan.13853

Castro EM, Regenmortel TV, Sermeus W, Vanhaecht K. Patients’ experiential knowledge and expertise in health care: a hybrid concept analysis. Soc Theory Health. 2019;17(3):307-30. doi: https://doi.org/10.1057/s41285-018-0081-6

Vieira ACG, Gastaldo D, Harrison D. How to translate scientific knowledge into practice? Concepts, models and application. Rev Bras Enferm. 2020;73(5):e20190179. doi: https://dx.doi.org/10.1590/0034-7167-2019-0179

Seco-Sauces MO, Ruiz-Callado R. Use of Web 2.0 in virtual communities of patients with rare diseases in Spain. Comun Soc. 2020;17:e7384. doi: https://doi.org/10.32870/cys.v2020.7384

Coronado-Vázquez V, Gómez-Salgado J, Monteros JCE, Fajas CC, Botaya RM. Equidad y autonomía del paciente en las estrategias de atención a personas con enfermedades crónicas en los servicios de salud de España. Gac Sanit. 2019;33(6):554-62. doi: https://doi.org/10.1016/j.gaceta.2018.05.008

Published

2023-10-10

How to Cite

Alencar, D. de C., Alencar, A. M. P. G., Ibiapina, A. R. de S., Campelo, L. L. de C. R., Cruz Neto, J., & Vasconcellos-Silva, P. R. (2023). The expert patient’s contribution to the empowerment of people with diabetes mellitus. Rev Rene, 24, e91843. https://doi.org/10.15253/2175-6783.20232491843

Issue

Section

Research Article

Most read articles by the same author(s)