Quality of life and mental disorders in caregivers of children with special needs
DOI:
https://doi.org/10.15253/2175-6783.20212261471Keywords:
Quality of Life; Mental Disorders; Caregivers; Disabled Children.Abstract
Objective: to analyze the relationship between quality of life and presence of common mental disorder in caregivers of children who need special health care. Methods: cross-sectional study with 87 caregivers of children with special health care needs. A sociodemographic questionnaire, the World Health Organization Quality of Life-bref and the Self-Reporting Questionnaire were used. Descriptive statistical analyses were performed based on frequencies and inferential with Mann-Whitney, Kruskal-Wallis and Spearman’s Correlation Coefficient tests. Results: mean rank differences were found in the relationship between responsible caregiver and common mental disorder; caregiver has some grievance, undergoes psychopharmacological treatment and psychological monitoring and the physical and general domains of quality of life and common mental disorder. Moreover, there was an inverse correlation between the domains of quality of life and common mental disorder. Conclusion: the lower the socres in the quality of life domains, the higher the development of common mental disorder in caregivers.
References
Dias BC, Ichisato SMT, Marchetti MA, Neves ET, Higarashi IH, Marcon SS. Challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Esc Anna Nery. 2019; 23(1):e20180127. doi: https://doi.org/10.1590/2177-9465-ean-2018-0127
Góes FGB, Cabral IE. Discourses on discharge care for children with special healthcare needs. Rev Bras Enferm. 2017; 70(1):163-71. doi: http://dx.doi.org/10.1590/0034-7167-2016-0248
Simonasse MF, Moraes JRMM. Children with special health care needs: impact on familiar daily routine. J Res Fundam Care Online. 2015; 7(3):2902-9. doi: http://dx.doi.org/10.9789/2175-5361.2015.v7i3.2902-2909
Varda DM, Talmi A. Social connectedness in family social support networks: strengthening systems of care for children with special health care needs. EGEMS. 2018; 6(1):23. doi: https://doi.org/10.5334/egems.232
Falco CB, Fabri JMG, Oliveira EB, Silva AV, Faria MGA, Kestenberg CCF. Mental disorders common among nursing residents: an analysis based on the Self-Reporting Questionnaire. Rev Enferm UERJ. 2019; 27:e39165. doi: https://doi.org/10.12957/reuerj.2019.39165
Ribeiro IBS, Correa MM, Oliveira G, Cade NV. Common mental disordes and socioeconomic status in adolescents of ERIKA. Rev Saúde Pública. 2020; 54(4):1-9. doi: https://doi.org/10.11606/S1518-8787.2020054001197
Macedo EC, Silva LR, Paiva MS, Ramos MNP. Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review. Rev Latino-am Enfermagem. 2015; 23(4):769-77. doi: https://doi.org/10.1590/0104-1169.0196.2613
Souza JM, Machado FRC, Antunes PP, Santos AC, Levandowski DC, Oliveira Junior AA. Quality of life and burden in caregivers of children with cerebral palsy. Rev Bras Promoç Saúde. 2018; 38(3):1-10. doi: https://doi.org/10.5020/18061230.2018.7748
Cruz DSM, Collet N, Nóbrega VM. Quality of life related to health of adolescents with dm1: an integrative review. Ciênc Saúde Coletiva 2018; 23(3):973-89. doi: http://doi.org/10.1590/1413-81232018233.08002016
Casamali FFC, Schuch FB, Scortegagna SA, Legnani E, Marchi ACB. Accordance and reproducibility of the electronic version of the WHOQOL-BREF and WHOQOL-OLD questionnaires. Exp Gerontol. 2019; 125:110683. doi: http://doi.org/10.1016/j.exger.2019.110683
Medeiros JRA, Carvalho MAP, Medeiros APG, Dantas GD, Matos ML, Pimentel ERS, et al. Common mental disorder among caregivers of children. Rev Enferm UFPE on line. 2018; 12(3):651-7. doi: https://doi.org/10.5205/1981-8963-v12i3a109914p651-657-2018
Wu J, Zhang J, Hong Y. Quality of life of primary caregivers of children with cerebral palsy: a comparison between mother and grandmother caregivers in Anhui province of China. Child Care Health Dev. 2017; 43(5):718-24. doi: https://doi.org/10.1111/cch.12464
Rocha RS, Pinheiro LP, Oriá MOB, Ximenes LB, Pinheiro AKB, Aquino PS. Social determinants of health and quality of life of caregivers of children with cancer. Rev Gaúcha Enferm. 2016; 37(3):1-6. doi: https://doi.org/10.1590/1983-1447.2016.03.57954
Inácio ALR, Peixoto APGL. A assistência de enfermagem e o cuidado familiar às crianças com necessidades especiais de saúde: uma revisão integrativa. Rev Atenç Saúde. 2017; 15(53):87-94. doi: https://doi.org/10.13037/ras.vol15n53.4593
Buriola AA, Vicente JB, Zurita RCM, Marcon SS. Overload of caregivers of children or adolescents suffering from mental disorder in the city of Maringá, Paraná. Esc Anna Nery. 2016; 20(2):344-51. doi: https://dx.doi.org/10.5935/1414-8145.20160047
Silva CBV, Luz IGD, Pereira IPC, Sá Junior JCB, Oliveira KRSG, Real MMF, et al. Burden and common mental disorders in caregivers of children and teenagers with psychiatric disorders. Braz J Develop. 2020; 6(9):72429-40. doi: https://dx.doi.org/10.34117/bjdv6n9-623
Delalibera M, Presa J, Barbosa A, Leal I. Burden of caregiving and its repercussions on caregivers of end-of-life patients: a systematic review of the literature. Ciênc Saúde Coletiva. 2015; 20(9):2731-47. doi: 10.1590/1413-81232015209.09562014
Okido ACC, Neves ET, Cavicchioli GN, Jantsch LB, Pereira FP, Lima AG. Factors associated with Family risk of children with special health care needs. Rev Esc Enferm USP. 2018; 52:e03377. doi: https://dx.doi.org/10.1590/S1980-220X2017048703377
Tseng MH, Chen KL, Shieh JY, Lu L, Huang CY, Simeonsson RJ. Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy. Disabil Rehabil. 2016; 38(24):2374-82. doi: https://dx.doi.org/10.3109/09638288.2015.1129451
Lee MH, Matthews AK, Park C. Determinants of health-related quality of life among mothers of children with cerebral palsy. J Pediatr Nurs. 2019; 44:1-8. doi: http://dx.doi.org/10.1016/j.pedn.2018.10.001
