Vulnerabilities and stresses of families of children with Congenital Zika Virus Syndrome
DOI:
https://doi.org/10.15253/2175-6783.20212262772Keywords:
Mothers; Microcephaly; Zika Virus Infection; Epidemics.Abstract
Objective: to identify situations of vulnerability and accumulation of tensions in the care of the child with Congenital Zika Virus Syndrome. Methods: qualitative study, in which 40 mothers of children with Congenital Zika Virus Syndrome participated. The research instruments used were a semi-structured interview, construction of genograms and ecomaps and field diary notes. The collected data were submitted to content analysis in the thematic modality. Results: the main situations identified were caring alone for the child with Congenital Zika Virus Syndrome; conflicts with the partner or marital separation; family abandonment; absence or health problems with other children; and financial difficulties. Conclusion: vulnerabilities, family conflicts, and financial difficulties were considered sources of family tension and stress when facing expenses with medications and treatments, revealing racial and socioeconomic disparities in the access to health care.
References
Souza NL. Congenital Zika syndrome: views from Northeast Brazil. Cad Saúde Pública. 2018; 34(2):e00184017. doi: https://doi.org/10.1590/0102-311x00184017
Cunha ACB, Pereira Junior JP, Caldeira CLV, Carneiro VMSP. Diagnóstico de malformações congênitas: impactos sobre a saúde mental de gestantes. Estud Psicol. 2016; 33(4):601-11. doi: https://doi.org/10.1590/1982-02752016000400004
McCubbin MA, McCubbin HI. Families coping with illness: the Resiliency Model Family Stresse, Adjustment, and Adaptation. In: Danielson C, Hamel-Bissell B, Winstead-Fry P. Families, health & ilness: perspectives on coping and intervention. St Louis: Mosby; 1993. p. 21-63.
Moreira MCN, Mendes CHF, Nascimento M. Zika, women’s prominent role and care: rehearsing contact zones. Interface. 2018; 22(66):697-708. doi: https://doi.org/10.1590/1807-57622017.0930
Wright LM, Leahey M. Enfermeiras e famílias: um guia para avaliação e intervenção na família. São Paulo: Roca; 2012.
Costa PHA, Mota DCB, Cruvinel E, Silveira OS, Ronzani TM. O ecomapa como ferramenta na formação para o trabalho em rede no campo de álcool e outras drogas. Pesqu Prát Psicossociais [Internet]. 2016 [cited Mar 13, 2021]; 11(3):669-81. Available from: http://pepsic.bvsalud.org/pdf/ppp/v11n3/11.pdf
Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2016.
Hamad GBNZ, Souza KV. Special child, special mother: the sense of strength in mothers of children with congenital zika virus syndrome. Esc Anna Nery. 2019; 23(4):e20190022. doi: https://doi.org/10.1590/2177-9465-ean-2019-0022
Bulhões CSG, Almeida AM, Reichert APS, Abreu PD, Dias MD. Oral hstory of mothers of children with Congenital Zika Virus Syndrome. Texto Contexto Enferm. 2020; 29:e20190167. doi: https://doi.org/10.1590/1980-265x-tce-2019-0167
Pimentel PLB, Furtado FMF, Saldanha AAW. Vulnerabilidades acerca do cuidado na perspectiva de mães de bebês com microcefalia. Psicol Estud [Internet]. 2018 [cited Mar 13, 2021]; 23:1-15. Available from: http://periodicos.uem.br/ojs/index.php/PsicolEstud/article/view/40178
Silva DA, Silva EQ. Mental health from the perspective of women affected by the Zika virus: an ethnographic study in Pará State, Brazil. Cad Saúde Pública. 2020; 36(8):e00100019. doi: https://doi.org/10.1590/0102-311x00100019
Instituto de Pesquisa Econômica Aplicada. Epidemia do vírus Zika e microcefalia no Brasil: emergência, evolução e enfrentamento. Texto para discussão. Rio de Janeiro: IPEA; 2018.
Bailey DB, Ventura LO. The likely impact of Congenital Zika Syndrome on families: considerations for family supports and services. Pediatrics. 2018; 141:e20172038. doi: https://doi.org/10.1542/peds.2017-2038G
Costa ES, Bonfim EG, Magalhães RLB, Viana LMM. Mothers’ experiences of children with microcephaly. Rev Rene. 2018; 19:e3453. doi: https://doi.org/10.15253/2175-6783.2018193453
Sá FE, Andrade MMG, Nogueira EMC, Lopes JSM, Silva APEP, Assis AMV. Parental needs in the care for children with Zika virus-induced microcephaly. Rev Bras Promoç Saúde. 2017; 30(4):1-10. doi: https://dx.doi.org/10.5020/18061230.2017.6629
Barros SMM, Monteiro PAL, Neves MB, Maciel GTS. Fortalecendo a rede de apoio de mães no contexto da síndrome congênita do vírus Zika: relatos de uma intervenção psicossocial e sistêmica. Nova Perspect Sist [Internet]. 2017 [cited Mar 13, 2021]; 26(58):38-59. Available from: http://pepsic.bvsalud.org/pdf/nps/v26n58/n26a04.pdf
Porto RM, Costa PRSM. O corpo marcado: a construção do discurso midiático sobre Zika Vírus e microcefalia. Cad Gen Divers. 2017; 3(2):159-91. doi: http://dx.doi.org/10.9771/cgd.v3i2.22125
Hilkner SH, Beck ARM, Tanaka EZ, Dini AP. Percepções de irmãos de crianças hospitalizadas por doença crônica. Rev Enf Ref. 2019; 4(20):77-86. doi: http://dx.doi.org/10.12707/RIV18074
Diniz D. Zika virus and women. Cad Saúde Pública. 2016; 32(5):e00046316. doi: https://doi.org/10.1590/0102-311X00046316
