Burden and quality of life of informal caregivers of children with cerebral palsy

Abigail Oluwadunni Davis; Oladapo Michael Olagbegi; Kayode  Orekoya; Mathew  Adekunle; Olufemi Oyeleye Oyewole; Modinat  Adepoju; Oluyemisi  Soetan

doi:10.15253/2175-6783.20212261752

Autores

Abigail Oluwadunni Davis Federal Medical Centre https://orcid.org/0000-0003-4753-8281
Oladapo Michael Olagbegi University of KwaZulu-Natal https://orcid.org/0000-0002-1320-7567
Kayode Orekoya Federal Medical Centre https://orcid.org/0000-0003-3713-9172
Mathew Adekunle Federal Medical Centre https://orcid.org/0000-0002-4579-9739
Olufemi Oyeleye Oyewole Olabisi Onabanjo University Teaching Hospital https://orcid.org/0000-0003-2432-247X
Modinat Adepoju Federal Medical Centre https://orcid.org/0000-0003-1748-4710
Oluyemisi Soetan Federal Medical Centre https://orcid.org/0000-0002-9133-4852

DOI:

https://doi.org/10.15253/2175-6783.20212261752

Palavras-chave:

Cuidadores; Assistência ao Paciente; Esgotamento Psicológico; Qualidade de Vida; Paralisia Cerebral.

Resumo

Objetivo: analisar a sobrecarga e qualidade de vida de cuidadores informais de crianças com paralisia cerebral. Métodos: o estudo transversal envolveu 109 cuidadores recrutados em uma clínica de fisioterapia em um hospital terciário. A qualidade de vida e a sobrecarga foram avaliadas por meio do Personal Wellbeing Index e do Modified Caregivers’ Strain Index, respectivamente. Os dados foram analisados de forma descritiva e inferencial. Resultados: as médias do índice de sobrecarga e dos escores de qualidade de vida foram 11,85 ± 5,72 e 64,68 ± 8,03, respectivamente. A maioria (67,9%) dos cuidadores apresentou bem-estar pessoal razoável, enquanto cerca de um terço (33,0%) apresentou alta sobrecarga. Idade da criança (B=2,454; p<0,005) e ocupação dos cuidadores (B= -2,547; p=0,001) foram preditores de tensão do cuidador. Conclusão: cuidar de crianças com paralisia cerebral impôs uma sobrecarga substancial aos cuidadores e a idade da criança e a ocupação dos cuidadores foram variáveis preditoras.

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