Experiência de familiares no cuidado do recém-nascido pré-termo egresso de unidade de terapia intensiva neonatal

Fabiane Blanco Silva Bernardino; Emanuelly Ferreira Lima Silva; Ronaldo Antônio da Silva; Leandro Felipe Mufato; Cláudia Silveira Vieira; Maria Aparecida Munhoz Gaíva

doi:10.15253/2175-6783.20222380705

Authors

Fabiane Blanco Silva Bernardino Universidade Federal de Mato Grosso https://orcid.org/0000-0003-0339-9451
Emanuelly Ferreira Lima Silva Universidade Federal de Mato Grosso https://orcid.org/0000-0003-2952-9277
Ronaldo Antônio da Silva Universidade Federal de Mato Grosso https://orcid.org/0000-0002-1962-3182
Leandro Felipe Mufato Universidade do Estado de Mato Grosso https://orcid.org/0000-0002-8693-5637
Cláudia Silveira Vieira Universidade Estadual do Oeste do Paraná https://orcid.org/0000-0002-0900-4660
Maria Aparecida Munhoz Gaíva Universidade Federal de Mato Grosso https://orcid.org/0000-0002-8666-9738

DOI:

https://doi.org/10.15253/2175-6783.20222380705

Keywords:

Family; Parenting; Qualitative Research; Infant, Premature; Intensive Care Units, Neonatal.

Abstract

Objective: to understand the experience of family members in the care of preterm newborns discharged from the Neonatal Intensive Care Unit. Methods: qualitative study, developed with 16 family members of preterm newborns discharged from a neonatal unit through semi-structured interviews. Data were submitted to thematic content analysis. Results: three categories were listed: Family members' rearrangements in the care of the preterm newborn at home; recognizing the specific care needs of the preterm child; and care in the face of complications and sequelae resulting from prematurity. Conclusion: family members recognize that the preterm newborn requires differentiated care and, therefore, experience a reorganization of their daily lives to promote the care of the child after discharge from the neonatal unit. Contributions to practice: this study points out the relevance of the nurse's work with families in neonatal units by strengthening family skills so that they can undertake care, so that it can be offered safely and meet the health demands that arise on a daily basis at home, in addition to guiding them about the need for monitoring the child after discharge.

References

Morais AC, Silva ACOC, Almeida CR, Lima KDF. Therapeutic itinerary of children’s mothers after the Kangaroo Method. Ciênc Cuid Saúde. 2017;16(2). doi: https://dx.doi.org/10.4025/ciencuidsaude.v16i2.35994

Xavier JS, Bernardino FBS, Gaíva MAM. Follow-up of newborns at risk: integrative literature review. Res Soc Dev. 2020;9:e579119515. doi: https://dx.doi.org/10.33448/rsd-v9i11.9515

Aydon L, Hauck Y, Murdoch J, Siu D, Sharp M. Transition from hospital to home: Parents’ perception of their preparation and readiness for discharge with their preterm infant. J Clin Nurs. 2018;27(1-2):269-77. doi: https://dx.doi.org/10.1111/jocn.13883

Petty J, Whiting L, Mosenthal A, Fowler C, Elliott D, Green J. The knowledge and learning needs of health professionals in providing support for parents of premature babies at home: a mixed-methods study. J Neonatal Nurs. 2019;25(6):277-84. doi: https://doi.org/10.1016/j.jnn.2019.07.002

Silva FVR, Gomes TO, Marta CB, Araújo MC, Braga ES. Preparation of parents of preterm newborn for hospital discharge: proposal for a protocol. Rev Pesq Cuid Fundam Online 2020;12:386-92. doi: http://dx.doi.org/10.9789/2175-5361.rpcfo.v12.8264

Serlachius A, Hames J, Juth V, Garton D, Rowley S, Petrie KJ. Parental experiences of family-centred care from admission to discharge in the neonatal intensive care unit. J Paediatr Child Health. 2018;54(11):1227-33. doi: https://dx.doi.org/10.1111/jpc.14063

Minayo MCS, Deslandes SF, Gomes R. Pesquisa social: teoria, método e criatividade - Série Manuais Acadêmicos. Petrópolis: Vozes; 2016.

Silva MO, Oliveira SR. Living of parents of pre-term in born children caring for domiciliary care: a bibliographic study. Rev Ciênc Saúde [Internet]. 2019 [cited June 2, 2022];4(1):24-33. Available from: https://revistaeletronicafunvic.org/index.php/c14ffd10/article/view/124/120

Carvalho NAR, Santos JDM, Sales IMM, Araújo AAC, Sousa AS, Morais FF, et al. Care transition of preterm infants: from maternity to home. Acta Paul Enferm. 2021;34:eAPE02503. doi: https://dx.doi.org/10.37689/acta-ape/2021AR02503

Akkus PZ, Bahtiyar-Sayganb B. Do preterm babies sleep differently than their peers? Sleep characteristics and their associations with maternal depression and parenting stress. Sleep Med. 2022;90:109-16. doi: https://doi.org/10.1016/j.sleep.2022.01.012

Kuntz SR, Gerhardt LM, Ferreira AM, Santos MT, Ludwig MCF, Wegner W. First transition from hospital care to home care for children with cancer: guidelines of the multi-professional team. Esc Anna Nery. 2021;25:e20200239. doi: https://doi.org/10.1590/2177-9465-EAN-2020-0239

Gatta M, Miscioscia M, Svanellini L, Peraro C, Simonelli A. A psychological perspective on preterm children: the influence of contextual factors on quality of family interactions. Biomed Res Int. 2017;2017:9152627. doi: http://dx.doi.org/10.1155/2017/9152627

Braga PP, Sena RR. Becoming a caregiver of premature newborns and the devices part of the continuity of post-discharge care. Texto Contexto Enferm. 2017;26:e3070016. doi: https://doi.org/10.1590/0104-07072017003070016

Berres R, Baggio MA. (Dis)continuation of care of the pre-term newborn at the border. Rev Bras Enferm. 2020;73:e20180827. doi: http://dx.doi.org/10.1590/0034-7167-2018-0827

Baraldi E, Allodi MW, Smedler A-C, Westrup B, Löwing K, Ådén A. Parents’ experiences of the first year at home with an infant born extremely preterm with and without post-discharge intervention: ambivalence, loneliness, and relationship impact. Int J Environ Res Public Health. 2020;17(24):9326. doi: https://doi.org/10.3390/ijerph17249326

Silva RMM, Zilly A, Toninato APC, Pancieri L, Furtado MCC, Mello DF. The vulnerabilities of premature children: home and institutional contexts. Rev Bras Enferm. 2020;73(suppl 4):e20190218. doi: https://doi.org/10.1590/0034-7167-2019-0218

Premiji SS, Reilly S, Currie G, Dosani A, Oliver LM, Lodha A, et al. Experiences, mental well-being and community-based care needs of fathers of late preterm infants: a mixed-methods pilot study. Nurs Open. 2020;7(1):127-36. doi: http://dx.doi.org/10.1002/nop2.370

Baldini PR, Lima BJ, Pina JC, Okido ACC. Mothers of children that need continuous and complex care: Factors associated with social support. Esc Anna Nery. 2021;25:e20200254. doi: https://doi.org/10.1590/2177-9465-EAN-2020-0254

Cañedo MC, Nunes CB, Gaiva MAM, Vieira ACG, Schultz IL. “I’m going home. And now?” The difficult art of the kangaroo method at home. Rev Enferm UFSM. 2021;11:e52. doi: https://doi.org/10.5902/2179769263523

Reichert APS, Soares AR, Bezerra ICS, Guedes ATA, Pedrosa RKB, Vieira DS. The third stage of kangaroo method: experience of mothers and primary healthcare professionals. Esc Anna Nery. 2021;25:e20200077. doi: https://dx.doi.org/10.1590/2177-9465-EAN-2020-0077

Galeano SPO, Marín SCO, Semenic S. Preparing for post-discharge care of premature infants: experiences of parents. Invest Educ Enferm. 2017;35(1):100-08. doi: https://dx.doi.org/10.17533/udea.iee.v35n1a12

Granero-Molina J, Medina IMF, Fernández-Sola C, Hernández-Padilla JM, Lasserrotte MDMJ, Rodríguez MDML. Experiences of mothers of extremely preterm infants after hospital discharge. J Pediatr Nurs. 2019;45:e2–e8. doi: https://doi.org/10.1016/j.pedn.2018.12.003

Furtak SL, Gay CL, Kriz RM, Bisgaard R, Bolick SC, Lothe B, et al. What parents want to know about caring for their preterm infant: a longitudinal descriptive study. Patient Educ Counsel. 2021;104(2021):2732-9. doi: https://dx.doi.org/10.1016/j.pec.2021.04.011